More than 40,000 inflammatory bowel disease patients are coming together to join a new IBD registry.
Here are four things to know about the Crohn's & Colitis Foundation of America's newest research initiative.
1. IBD Plexus will be the world's largest IBD registry, including patients of all ages.
2. IBD Plexus will serve as a platform for research and knowledge exchange platform. The initiative draws on existing CCFA initiatives including CCFA Partners and CCFA's Pediatric RISK project.
3. "Rather than having multiple, fragmented research efforts and registries, IBD Plexus is providing access to data across study cohorts from a single point. IBD Plexus utilizes technology that enables its stakeholders to capture, organize and link large amounts of data on individuals with IBD, and to mine and share this data for insights into the causes of and potential treatments for IBD," said Caren Heller, MD, chief scientific officer of CCFA.
4. The new project received $17.5 million in funding from the Helmsley Charitable Trust.